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What actors have Neurofibromatosis?

Notable Cases In November 2006, there was an hour-long documentary on the British television network Channel 4 about Facing the World, an organization that helps children with severe facial disfigurements in developing countries. One of the children featured on the documentary was Arianto, an Indonesian boy who suffered from a severe form of neurofibroma resulting in hemifacial giganticism.

Also, in that year, another documentary on BBC2 (edge of life) featured a Neurofibromatosis case. On that documentary was a young teenager, Amit Ghose, who had decided for himself to have corrective surgery at the age of 14. In this case the neurofibroma occurred on the face resulting in the loss of sight in one eye and having to have it removed. This was a case NF-2 resulting in the disfigurement of the one side of the face leaving the other side completely normal.

In January 2008, 32-year-old Huang Chuncai of China underwent a second operation to remove another 4.5 kg (9.9 lb) of tumor from his face. A previous operation removed 15 kg (33 lb) from what was originally a 23 kg (55.7 lb) tumor.

In March 2007 the treatment of 30-year-old neurofibromatosis patient Pascal Coler of France ended after he had received what his doctors call the world's first successful full face transplant.

Joseph Merrick, the Elephant Man, was once considered to have been affected with neurofibromatosis type I. However, it is possible that Merrick suffered from the very rare Proteus syndrome. This however has given rise to the common misconception that Neurofibromatosis and "Elephant Man Disease" are one and the same.

http://en.wikipedia.org/wiki/Neurofibromatosis#Notable_Cases

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